My name is Jessica and I am 22 years old. My Mom, Angelique, asked me to write an article about what it’s like to have a mother living with Fibromyalgia.
For a long time I didn’t understand what Fibromyalgia was. I read through the research, got the just of it and I still don’t understand what it truly means and what she goes through everyday. I don’t think I ever will.
I don’t understand why my mother, someone who once enjoyed every little thing in life can no longer do these things, like waking up and going on a adventure or small things like swimming with the family on a hot summers day.
We used to go on little road trips on days where she felt very little pain and I would look at her staring out the window enjoying the nature, looking at the trees as they pass by and just thinking I wish we could do this more often because it lights up her face every time we do these things.
I think of Fibromyalgia as a thief, taking away someone’s life, dreams, purpose and just leaving them breathing and not living. That’s exactly what this thief did. It took everything my mom once loved, stripped away from her everything that made her happy, and I didn’t understand why.
She has explained many times what she goes through and many times I’ve been left angry and confused. My mom has been through so much already before this thief came and took away everything she had left. I can’t understand how life can be so ruthless.
I’d like to think I lead a very active life, driven by adrenaline. I enjoy water sports, scuba diving and quad biking. What I wouldn’t give to have her there enjoying it with me? She used to scuba dive and go on game drives and I really wished that her and I could do these things together but unfortunately even small things like going to the shops or the mall puts her in a bed ridden state for a few days.
There is a silver lining though, and days that I always look forward to. Once in a while or after her treatments, it can sometimes take away her pain completely and for a few days she’s back to who she once was. Planning trips to a local nursery or going to the movies. Sometimes she will even plan a trip to the Pilanesberg Game Reserve. Unfortunately this only lasts a few days, but I get to see her face light up again, even if it is just for a few moments.