Chronic Pain, Depression, Fibromyalgia, fibromyalgia warrior, Health, Spoonie

Fibromyalgia Diagnosis: Searching for Answers but Treated Like a Liar Instead! by Rikki-May

Fibromyalgia warrior, Rikki-May suffers from Fibromyalgia. Rikki-May has added her face and story to Faces & Stories of Fibromyalgia. I am so grateful that Rikki-May has shared this, as each story told raises awareness and helps fellow sufferers.

You can connect with Rikki-May by following her on Instagram.

Faces of Fibromyalgia Fibromyalgia Diagnosis: Searching for Answers but Treated Like a Liar Instead, by Rikki-May
Fibromyalgia Diagnosis: Searching for Answers but Treated Like a Liar Instead, by Rikki-May

My name is Rikki-May. I found out I have Fibromyalgia about 5 years ago. I was in so much pain, my legs would swell and go red (this was my first symptom of many). I had every test going from anemia to leukemia and all clear (we all know this pain).

I was going back to doctors every week, one of the surgeries I went to actually banned me from making an appointment and would only give me an over the phone, and someone would ring in 5 to 7 days. It was horrible thinking people think you’re lying when you’ve never told a tale in your life.

I started working for the amazing Matt at a bar. He was very understanding because he suffered from Fibro too. He and I spoke about my symptoms and he told me that I had Fibro. (I had never heard of it before then).

In the end, I went to my new doctors and told them that I thought I had Fibro and I wanted to see someone who knows about it. (Many doctors 5 years ago didn’t even class Fibro as a disease). Anyways, I went to Age UK and he was great. He tested me for a couple of things that the GP wouldn’t have, just to be sure. He did a really good examination.

He told me that I had Hypomobility. I knew about Hypomobility as it’s in my family but didn’t know that I had it myself. I finally had a diagnosis. I was expecting support but got nothing.

For years it was manageable. I then got pregnant and had a difficult pregnancy and birth. 10 weeks after an emergency Cesarean Section and Sepsis, I then had to have two spinal surgeries in the space of 5 days.

This was last year and this has triggered my Fibro and now it’s unmanagable. I have to take oxycodone everyday just to complete the smallest of tasks. Depression has really taken a hold on me now. I feel guilty every day because of my one year old.

I broke both my elbows and this triggered a massive flare. The fatigue was unbearable. I could barely keep my eyes open most days. But I had to keep going for my one year old.

I have everything that goes with Fibro; Migraines, Hypomobility, sore skin, IBS, Depression, just to name a few. I am grateful for Lady Gaga for sharing her story. Since then it is spoken about more, and more is being done but there is still a long way to go.

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