Fibromyalgia warrior, Rosie Burt suffers from Fibromyalgia. Rosie has added her face and story to Faces & Stories of Fibromyalgia. I am so grateful that Rosie has shared this, as each story told raises awareness and helps fellow sufferers.
You can connect with Rosie by following her on Instagram.
Hello, my name is Rosie and before I go ahead and share my story, I thought I would tell you a little bit about myself. I’m 23 years old and I live in Newcastle. I live on my own with my dog called Daphne. I have suffered from health issues since I was a young child. As I got older, that’s when the problems started. Keep reading and I will tell you my story in my very own words.
I always felt different, even from a young age. From the age of 5, I developed anxiety and I hated being in groups of people, so I hated the idea of school.
Physically I was diagnosed with scoliosis at age 9. Every 6 months up until I was 18, I was seen by my consultant and we would discuss the shape of my spine and how it was affecting me. I had a series of MRI scans, X rays, and medications. I was offered a back brace to wear but I declined as I felt extremely nervous that other children would notice it. In time the curve improved, and I was discharged at age 18.
I then started to experience a lot of back pain and suddenly I was noticing the pain was all over my body. For a few years I went to doctors and they could not give me any answers and just blamed it on mechanical back pain. Eventually at the age of 22 I went to see a Rheumatologist and she diagnosed me with Fibromyalgia. I cried with relief as finally I had a name for the symptoms I was experiencing. I got things to help me around my home such as handles outside my door, handles in the bathroom, a perching stool, bed rails, and a bath board. It was very daunting for someone that age as you really don’t expect to be asking for help of that kind.
I am proud of myself for getting this looked at and yes, I had to push my doctors into getting me to see a specialist but it worked out okay in the end. I have really learned to listen to my body. I only work on a casual basis as I am in extreme pain day in and day out.
Now I shall move on to my mental health, I have a diagnosis of bipolar and borderline personality disorder. I won’t say too much about this as this blog is mainly on Fibromyalgia. But I will say that living with a chronic and mental illnesses can be very challenging. I am grateful that I have support from my doctors/mental health nurse, friends, and family.
I sometimes think about how well I was doing before the fibro started. I went from balancing a job and studying, to working only on weekends. But I’m so determined to just keep on going. Life is really what you make it to be. My confidence has grown so much since joining the chronic illness community on Instagram.
What I would say to people who are also suffering from chronic illnesses:
- Learn to always pace yourself and to always listen to your body no matter what.
- Try out any treatments/medications that professionals advice you to.
- Also, do your own research and learn things from other fellow sufferers.
I have ultimately learnt to ‘always do you’; self-care is also extremely important whether that’s for chronic health or mental health or both. Look after yourself and do what makes YOU happy. I like to do my makeup, have a bubble bath, pop a face mask on, and light some candles. Self-care varies and there are lots of things you can do to make yourself feel good. Never give up and always put yourself first. I am a very kind and caring person but when it comes to your own health, just do you.
Thank you for reading and anyone is welcome to reach out to me via my Instagram (@fibroprincess) Take care.