Dear Angelique,RIKA KINO, TOKYO, JAPAN
Opening up about your experience with Fibromyalgia is very courageous and inspiring to many people.
I really believe that your work brings hope to others and raises awareness.
I think I should have known more. I should have asked the doctors earlier whether I had Fibromyalgia or other similar diseases, like ME/CFS.
I really do respect your opinion that educating ourselves is key and that patients with Fibromyalgia or other diseases should never give up hope, even when it’s hard. They must keep looking for treatments.
As a woman, I always wanted to have children, however after Fibromyalgia hit, as you know, the pain becomes a burden.
Once I went to a Fibromyalgia Community Forum in Tokyo. They have people there that suffer from Fibromyalgia, ME/CFS, and other diseases. There was about 25 people there, so not a large group. They were in their 30’s to early 50’s. I heard 5 people in their 20-30’s (married, single and no children) saying that when having Fibro worries them the most, is after giving birth and raising a child.
My family and I worry about how my condition will get. I don’t have anybody around me that suffers from Fibromyalgia to talk to about the changes in your condition after giving birth and raising a child.
I worry that I might move around.
In Japan, Fibromyalgia is not yet specified as an incurable disease from the Government and as a result, you don’t get much help from the health insurance.
But after I read you blog, It really made me change my mind about things that I never knew about.
Nobody can predict much about the future.
I’m getting old so I might need to freeze my eggs now, in order to have a child. This might be my new task!
Your blog is eye opening and I believe that many, many people around the globe feel that too.
Have a nice day,